Respecting autonomy in the endoflife care of people with intellectual disabilities: A qualitative multiplecase study

N Bekkema, AJE De Veer, C Hertogh… - … Intellectual Disability …, 2014 - Wiley Online Library
people with ID remains unclear. This article describes how caregivers and relatives shape
respect for autonomy in the end-of-life care for people … important for respecting autonomy. In …

[PDF][PDF] Respecting autonomy in the end-of-life care of people with intellectual disabilities: a qualitative multiple-case study

I MENCAP, J Wiley - www. nivel. nl nivel@ nivel. nl Telephone+ 31 30 2 729 …, 2016 - nivel.nl
Respect for autonomy in the end-of-life care of people with ID was mainly reflected in helping
the person with … Although the significance of respecting autonomy in end-of-life care is not …

… of those complicated cases”: health practitioners' perspectives and practices of providing end-of-life care for people with profound intellectual and multiple disability

H Voss, A Loxton, J Anderson, J Watson - BMC palliative care, 2021 - Springer
… the value of decision-making autonomy at the end of life, in creating a “… Qualitative results
highlighted a diverse range of health … study are not publicly available due to privacy and ethical

Supporting end of life decision making: Case studies of relational closeness in supported decision making for people with severe or profound intellectual disability

J Watson, E Wilson, N Hagiliassis - … in Intellectual Disabilities, 2017 - Wiley Online Library
… Although the importance of respecting a person's autonomy at … Within the context of this
study, autonomy for people with … In contrast to a single case study, a multiple case study design …

End-of-life care supports and decision-making practices in specialist intellectual disability residential services

C Dalton - 2019 - cora.ucc.ie
Qualitative content analysis techniques were used to analyse the data gleaned from … making
at end of life from an ethical and legalistic perspective. The principle of relational autonomy, …

End-of-life issues and support needs of people with profound intellectual and multiple disability

H Voss, J Watson, MJ Bloomer - End of life and people with intellectual and …, 2022 - Springer
… To date, research focussed on end-of-life care and support … (AAIDD) highlights respect for
autonomy as one of four major … intellectual disabilities in the Netherlands: A qualitative study. …

Perspectives of people with mild intellectual disabilities on care relationships at the end of life: A group interview study

N Bekkema, AJE de Veer, CMPM Hertogh… - Palliative …, 2016 - journals.sagepub.com
… ’ experience that respecting autonomy does not always … were not part of the qualitative
analyses. The voting outcomes … Autonomy is also a major principle in end-of-life care within the …

Literature review of best health and social care practices for individuals with intellectual disabilities encountering the end of life

A Sterling Welch… - Nursing and Palliative Care, 2016 - gala.gre.ac.uk
… Continuing with the theme of communicational challenges, a qualitative multiple case study
… workers deliver end-of-life care provision that respect the autonomy, life values and wishes …

The practice of mutual protection in the care of children with palliative care needs: a multiple qualitative case study approach from Jordan

M Atout, P Hemingway, J Seymour - Journal of Pediatric Nursing, 2019 - Elsevier
… Therefore, any future intervention planned for them should respect parents' autonomy and
… She mentioned that she preferred not to inform children or even teenagers about end of life

… caring': shifts in care approaches at the end of life of people with intellectual disabilities; a qualitative study of the perspectives of relatives, care-staff and physicians

N Bekkema, AJE de Veer, CMPM Hertogh… - BMC Palliative Care, 2015 - Springer
… Another paper, based on the same qualitative data, … care providers try to respect the autonomy
of people with ID at the … field of end-of-life care for people with intellectual disabilities, after …